A Beautiful Evening

We have a beautiful pond right off of our deck and last night while eating dinner outside we had one of our first springtime visitors. A beautiful Mallard that splashed and preened in front of us while eating all the goodies out of the pond. The kids were fascinated and spent a half an hour looking at her and asking questions. I found an old copy of a field guide for birds and we looked her up, discussing why she wasn't a certain duck and how we determined she was a Mallard. Blue grabbed his nature journal and drew picture of the pond and duck and practiced writing his name and date on his paper. Red showed some interest in drawing in her journal and Yellow just enjoyed taking in the scene. I'm looking forward to many more days like this.

Teachers Domain

I just found this wonderful site called Teachers Domain! Here is some information from their website:

Teachers' Domain is a free digital media service for educational use from public broadcasting and its partners. You’ll find thousands of media resources, support materials, and tools for classroom lessons, individualized learning programs, and teacher professional learning communities.

They receive major funding from the National Science Foundation and seem to have an especially rich collection of science resources. As a registered member (which is free!) you have the ability to create folders to organize your resources, by child, by topic, etc. There are also several ways to filter which I think are particularly helpful for educations: Grade Level, Content, Media Type, Permitted Use and Accessibility Features. There is also the ability to join groups and create your own groups which I have not had the opportunity to look at.

*Thanks to Only Small Things blog for posting about this fantastic site!*

Update:
It looks like the groups are for pre-formed groups, I have not figured out how to join one or create one yet. Does anyone else know anything about the group feature?

Also, Blue watched several videos and loves them! He even asked to watch one several times and then asked for the same materials they were using and did his own experiment.

New Medication

Well, it is that time again to try a new medication, but this time I will be injecting myself! I will be starting Enbrel next week and am keeping my fingers crossed it will help. I went to the Rheumatologist yesterday and had labs done, chest x-ray, TB test, Pneumonia vaccination, and a little class on how to inject myself. My immune system will be lowered so I am going to have to be careful not to catch any infections, easier said than done with three children under the age of 6. Please let this medication work!

It's been a while...

A lot has transpired since the last time I posted here. We moved 2500 miles away and are now back in the "lower 48", as Alaskans like to call the continental United States. This has been a really good move for us and I hope the military doesn't change our plans. We are now close to family, old friends and a lot more resources for my health problems. The children are still adjusting to all the changes but like being with Grandma and Papa so that helps. We've found a really great homeschooling group with kids their age, and it is fairly active so we are staying busy. I am looking forward to spring (which will be here a lot sooner than in Alaska) and starting this next phase of our life!

Yearly Celebrations

Now that life has settled down a little I am going to put together a list of monthly celebrations. I checked out a really lovely book called "Days to Celebrate" by Lee Bennett Hopkins. Each month is a chapter and starts with a calendar of birthdays, important events, and holidays listed for each day. Following is several pages of poems by authors who were born during the month or commemorating events that occurred during the month. The book is mostly Euro-centric, so I hope to find a multicultural resource that is similar.

I'm also using a book I found at a 2nd hand store the other day "Every Day a Holiday" by Silvana Clark. Like the title says It has a celebration for almost everyday of the year! They range from super silly, like Play in the Sand Day (Aug 11th), and National Day of Puppetry (last Sat in April) to the more traditional holidays we are used to celebrating. There are one page descriptions for each day with fun activities, crafts and food ideas. This book has focus on US holidays and is more oriented to Christian holidays.

I'm hoping the book "Festivals Together" by Sue Fitzjohn, Minda Weston and Judy Large will help fill the large multicultural voids. I may also contact some of my Muslim and Jewish friends for suggestions from them.

These are some of the subject areas I plan on including in my list:

• Holidays
• Festivals
• Famous authors birthdays (if they are age appropriate)
• Famous poets birthdays (if they are age appropriate)
• Historical events, including inventions, discoveries
• Musician birthdays
• Season changes

I don't plan on doing a celebration everyday, or even all those on this list, but a few sprinkled here and there could be a fun addition to our school days.

January

4th Thursday - National Clashing Clothes Day

1 - New Years Day
14 - National Volunteer Day
15 - Martin Luther King Jr's Birthday
18 - Winnie the Pooh Day
19 - National Popcorn Day
29 - National Puzzle Day

February

3rd Monday - Presidents' Day
2nd Full Week - Random Acts of Kindness Week

14 - Valentines Day
19 - Solar System Day
 24 (2013) - Chinese Lantern Festival

March

40 Days before Easter - Mardi Gras

2 - Dr. Seuss' Birthday
14 - National Kids' Craft Day
17 - St Patrick's Day
20 - World Storytelling Day
21 - World Poetry Day
27 (2013) - Holi
30 - Van Gogh's Birthday

April

Easter (sometimes in March)

2 - International Children's Book Day
20 - International Astronomy Day
22 - Earth Day
26 - National Bird Day

May

2nd Sunday - Mother's Day
Last Monday - Memorial Day
Last Tues/Wed - National Geographic Bee Finals

1 - May Day
1 - Mother Goose Day
5 - Cinco De Mayo
12 - Limerick Day

June

1st Saturday - National Trails Day
3rd Sunday - Father's Day

1 - Superman's Birthday
7 - National Crayon Day
9 - Donald Duck's Birthday
14 - Flag Day
19 - Butterfly Day
21 - First day of Summer
23 - National Pink Day
25 - Eric Carle's Birthday

July

4 - Independence Day
10 - Teddy Bear Picnic Day
24 - Cousin's Day

August

2 - Friendship Day
3 - Parks Day
29 - Mary Poppin's Birthday
30 - National Toasted Marshmellow Day

September

1st Monday - Labor Day
1st Sunday after Labor Day - Grandparent's Day
4th Sunday - National Good Neighbor Day

7 - Backwards Day
18 - National Play-Doh Day
22 - National Family Day
22/23 - First Day of Autumn
29 - Pumpkin Day

October

2nd Monday - Columbus Day

1 - World Vegetarian Day
16 - Dictionary Day
31 - Halloween

November

Thanksgiving Week - National Game and Puzzle Week

4th Thursday - Thanksgiving

3 - National Sandwich Day
11 - Veterans Day
14 - National Teddy Bear Day
15 - American Recycle Day
16 - The Sound of Music Day
17 - Homemade Bread Day

December

8 Days between November 25 - December 26 - Hanukkah 
December 26 - January 1 - Kwanzaa

21 - First Day of Winter/Winter Solstice
22 - Flashlight Day
25 - Christmas
26 - Boxing Day
31 - New Year's Eve

Welcome to Holland

I saw this on the blog Letters From Holland and thought it was a wonderful description of not only the experience of raising a disabled child but also the grief of living with a disability. When you are young you have dreams of what your life will be like and living with a chronic disability is isn't one of them. You don't necessarily want to change your experience because of everything you DO have, but there is a loss of your dreams and it can be difficult to let those go.

Welcome to Holland

by Emily Perl Kingsley (c1987 by Emily Perl Kingsley. All rights reserved)

I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this...... 

When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.

After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."

"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."

But there's been a change in the flight plan. They've landed in Holland and there you must stay.
The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.

So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.
It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.
 

But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned." And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss.
 

But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.

Can I really do this homeschooling thing?

Let me start by saying I'm having a rough week. It has not been the physical pain, though that is always there, but the psychological pain of wondering if I have failed as a mother to my wonderful children.

Blue, my oldest son, started Play Therapy last week because of some behavioral issues and unexplainable fatigue. At this point she believes it is anxiety, and I am sure I am a big cause of it. In the past year I have spent so much time at various doctor appointments that when I get clothes and makeup on the kids ask if I am going to the doctor? Not grocery shopping, not to the library, the doctor! He knows I am "sick" but he has become obsessed with me dying. I went through a long phase of this myself when I was young and can remember the overwhelming fear I had of my mother dying. It is horrible to hold him as he is sobbing "I want to die when you do Mom, I want to die when you do". I have tried to explain to him that yes I am "sick" but I'm not dying, it is so hard to know how much or how little to tell a 4 1/2 year old about these things.

Yellow, my twin son, was just evaluated by the local school district and has qualified for the special education preschool because of several issues: expressive language and articulation, personal/social, and daily living skills. I knew he was behind, and knew he would most likely qualify, but it was still difficult to hear someone else tell me he was. They were explaining the services they could provide in the preschool environment and mentioned a small yellow bus could transport him there and back. That was when the tears almost took over. I just imagined my angelic and quirky little boy alone on the "short bus" heading to his special ed preschool. 

When you have children you dream of what their futures will hold and all the adventures this life will take them on. Maybe because of everything I have been through my wishes for my children were simple, I wanted them to be healthy and happy. They could be a sanitation worker or an engineer, I didn't care I just want them to be happy. Right now Blue is not happy, and Yellow is struggling and frustrated.

Are all these issues they are having my fault? In some way have I caused them or contributed to them? I see how much other mothers do for their kids, and it makes me feel inadequate. Some days I can barely care for myself, and I wonder how in the world I am going to educate my children? Then I'll have a good day and think that even if I can't teach them everything I want to they are still learning through play and life, and are surrounded by a family that loves them. Something I don't think public school can provide them.

So we're back to taking it one day at a time...