Mila and Hambone

I just found another book trying to explain to young children about Fibromyalgia and Chronic Fatigue Syndrome. The first is "Why Is Mommy Staying in Bed Again Today?", and the second is "Why Can't Sharon Come Out To Play?", discussing pediatric Fibromyalgia. To order check go to Fibromyalgia Treatment Center.

My oldest son is starting to ask questions about why Mommy is still sleeping, and why Mommy can't do this or that? It is so hard to know what to tell him. Do I tell him I'm sick, do I tell him I'm tired? I just don't know what to do.  

Grocery Shopping with a disability

Here are some tips I've come up with for grocery shopping with Fibromyalgia and/or Chronic Fatigue Syndrome:

For numbers 1-5 do these on separate days so you don't get too tired or have someone else help you.

1. Clean out refrigerator to make room for what you are going to purchase.

2. Make a menu schedule for the week.

3. Write down a grocery list according to area - baking, soups, produce, deli, frozen, etc. (this cuts down on wandering around the store in a fibro fog haha).

4. On your calendar write down what day you are having what, which cookbook/recipe, and page number. This way whomever is cooking knows right where the recipe is.

5. Get ads, coupons, grocery list, and re-usable bags together and put in car.

6. Drive to the store and park close to the door, *don't forget the items from step 5 Wink!

7. If having a bad day use the electronic wheelchair at the front of the store, don't be embarrassed when it makes that beep, beep, beeping noise as you are backing up.

8. Make sure they bag frozen foods together and anything that needs refrigerating.

9. Have a bagger help you out to your car and unload your groceries.

10. Once home take in the frozen foods and those that need refrigerating. If you have the energy unload the rest, if not take a break and finish later!

11. Yay, you did it!!!


Does anyone else have suggestions for making grocery shopping easier?